Meet the Parents of children with Type 1 Diabetes.
I belong to a few online Facebook groups for parents of children with Type 1 Diabetes. Some of the stories I read in there make me laugh, some make me smile, some make me want to cry and rant.
I feel sad when ever there is a new member to the groups, as it means another child has been given a diagnosis of Type 1 and another family is being hit with the realisation of just what that means. I feel happy though, that they have found the groups which even now help me and teach me new things.
I constantly see posts that make me smile, posts celebrating the achievements of a Type 1 child. I laugh at posts where parents have accidentally finger prick blood tested the wrong child in their sleep deprived state during the night…. sometimes it’s some poor child who has come over for a sleep over even.
I want to shout for the people whose children attend schools that just do not get how serious the condition is. Schools that refuse to test the children or administer insulin…. or even hypo treatment. It makes me so grateful for the schools that my own Type 1 son has attended.
These groups are where we Type 1 parents turn when we have broken or lost something whilst away on holiday and need a replacement. It is where we turn when our children are really poorly and the staff at the hospital or on the phone aren’t Type 1 experts and are trying to tell us to do something we just KNOW isn’t right, but we need someone to back-up our own thoughts to be sure.
As a Type 1 parent, these groups are an amazing support network. Somewhere where people actually understand what life is like with Type 1 Diabetes. People who understand just how amazingly brave our Type 1 children are, who mourn each other’s difficulties and celebrate each other’s successes.
When I started my blog, it was partly to hopefully make other Type 1 parents feel a little less alone in the new world that they live in. A world of insulin ratios, carb counting, ketones and more. Reading posts in the Facebook groups I also have realised just how individual a lot of our diagnosis stories and indeed our children are.
We are the same but unique just like our children. I’ve decided to start a new little section on my blog for the parents of children with Type 1 Diabetes. It will be a Meet the Parents section, where I interview parents of children with Type 1 and publish their responses. The first Meet the Parents interview is already live.
When my own little five-year old son (now 12) was diagnosed over 7 years ago, I was sat in a hospital bed with him as he slept hooked up to an IV and very ill. I searched online for information on Type 1 Diabetes, at the time that was a mistake. I found all the worst case scenarios, stories that made me cry when I was already at such a low point.
I do not think that I have ever felt so low, scared or alone in my life.
My hope is, that the next parent sat in that lonely scary hospital bed when they search, they will find the Type 1 Diabetes section of my blog. They will read our story, and they will read the interviews with lots of Type 1 parents which are to come, and they will feel even a little less alone and a little less scared.
If you are a Type 1 parent yourself and would like to take part, then email me at firstname.lastname@example.org and we can go from there.