Angry, sad … they both intermingle a lot today.
I’ve just seen the most heartbreaking thing online. A 21-year-old man died in his sleep due to hypoglycemia from a sickness bug. That is literally every Type 1 Diabetes parent’s worst nightmare.
It’s what has me breathe a sigh of relief every morning when I walk into my son’s bedroom and he moves in his bed. It’s what has me set my alarm for the middle of the night to check him sometimes as I’m not sure that his blood glucose level is steady enough to carry him through the night safely.
The anger I feel right now is that people dismiss Diabetes, they don’t see the seriousness of it and some just don’t care. I’ve been doing sponsored walks recently for Type 1 Diabetes research which goes to JDRF – Juvenile Diabetes Research Foundation and as I’ve walked around and gotten chatting to people about what I’m doing and why …
I mention that it’s for Type 1 Diabetes and the look on their faces often says it all, or they tell me about their neighbour who has Diabetes but they control it with tablets and don’t eat cake, maybe my son could try that. Some clearly think why aren’t you walking for a more ‘serious’ illness/disease.
I’m not angry at these people, they don’t know any better due to what they see in the media and the stigma surrounding any type of Diabetes. What angers me right now is that I’m fundraising for what is a life threatening condition and so many people do not seem to give a crap.
Even those who do know how serious it is and what we as a family have been through at times. I’m angry that the media has led to this apathy and disdain for Diabetes.
My fundraising so far has quite frankly been a bit poop, apart from some pretty amazing people who I am so grateful for. Because to so many it is ‘just Diabetes’. Yep Type 1 Diabetes is controllable with a lot of effort and for my son 4 injections a day every single day for the last 8 years and without a cure – for the REST OF HIS LIFE.
Yes mostly people can live with Type 1 Diabetes, but no one deserves to have to do so.
And we’re the lucky ones … we live in a country with an NHS system where insulin, needles and the basic things that my son needs to stay alive are free and easily accessible. In many other countries if you have no medical insurance and aren’t eligible to claim any help from anywhere, then you just don’t get the essentials that you need to live. I hear all the time about people who died as they couldn’t afford insulin.
So next time you think it’s ‘just diabetes’ remember that people do sometimes die from it, can suffer awful complications from it and live with it for life.
Rant over, my page for donation is here or you can paypal me at firstname.lastname@example.org with ‘Type 1 challenge’ in the info bit if it’s easier as the site only accepts card payments. Any donations are appreciated, every pound makes a difference so donate a pound and I’ll love you.
Apologies if I’ve offended anyone.