Signs and symptoms of Type 1 Diabetes – our diagnosis story.

 

It’s almost the anniversary of when my son was diagnosed with Type 1 Diabetes at the age of 5 and this year it will have been 6 years. Before he was diagnosed I didn’t know what the signs and symptoms of Type 1 Diabetes were, and it almost ended badly for us. I don’t want that to happen to other families, so I thought it was time that I wrote this post and did my bit to try to help prevent it.

 

Knowing the signs and symptoms of Type 1 Diabetes in children could save your child’s life. That sounds dramatic doesn’t it? I’m not trying to scare anyone, but due to my lack of knowledge about Type 1, my son could have died.

 

signs and symptoms of type 1 diabetes

 

Straight away at the beginning of this post I am going to give you a short list of the main signs and symptoms of Type 1 Diabetes, so that hopefully they will stay with you. Please note though, that even if your child or yourself have all or any of these symptoms it doesn’t immediately mean it is Type 1 Diabetes. In simple terms here are the signs and symptoms to watch out for:

  • Increased thirst – this can really be insatiable, and lead to bad behaviour if they you say no to a drink, as the need is so strong.
  • Frequent urination – this is not just due to them drinking more, this is their body trying to flush out the extra glucose that it can’t cope with, and the build up of ketones.
  • Tiredness – they will be likely to be lacking in energy and finding simple things a real chore to manage.
  • Weight loss – this can be extreme and can happen in a very short space of time.

These are the main signs and symptoms, and what Diabetes UK call the four T’s of Type 1, Toilet, Thirst, Tired, Thinner. Type 1 Diabetes isn’t always easy to spot, some Doctors have been known to miss it, but the more aware you are of the signs, the more likely you will spot it.

There are some other symptoms, such as blurred vision, episodes of thrush, slow healing of cuts and grazes, acetone smelling breath. The breath I would describe as smelling like nail varnish remover. The later stages of untreated Type 1 diabetes can involve vomiting, heavy deep breathing and becoming unconscious (coma).

Our Type 1 Diabetes Diagnosis.

 

A few weeks before he was diagnosed my son had some sort of virus/bug that meant he was vomiting, not himself and generally feeling rubbish as you do when you have a sickness bug. There was nothing unusual about this bug,just the usual childhood bug that had me washing sheets and following him around the house nervously with a bowl. He was no less or no more ill than he had been in the past, and he seemed to recover well.

 

After the bug disappeared I noticed that he was drinking a lot more than usual, but I put this down to the illness and the possibility of dehydration because of it. So, I let him drink plenty including fruit juice. Any Type 1 diabetes parents reading this now will probably be cringing with me at this bit, as fruit juice is very sugary and the worst possible thing for him to have been drinking whilst undiagnosed and as we found out later already with dangerously high blood glucose levels.

 

His behaviour had been getting steadily worse just before, during and after his sickness bug. I had no idea what to do with him, he was wild and uncontrollable. I was at my wit’s end trying to work out what parenting fail I’d committed to have such a badly behaved child.

 

One of our biggest arguments was over the fact that he was insisting on drinking so much before bed and then wetting the bed every night. I still feel awful about this now, as although I didn’t know what was going on, he must have been so desperate for that drink.

 

He would have wet the bed regardless of how much he had or hadn’t drunk, it’s another way that your body tries to get rid of excess glucose and a build-up of ketones.

 

I rang the Doctors on the Thursday and got him an appointment for the Monday because I noticed he had lost a lot of weight when he was ill. I wasn’t that worried as he’d been sick a lot so weight loss seemed natural, although it was a lot of weight. I mostly booked the appointment to set my mind at ease, as he just didn’t seem himself.

 

On the Friday he was mostly just lying around the house, he didn’t want to play, he just wanted to watch television. Anyone who has ever met my son knows that he doesn’t do sitting still, he rarely watches tv and if he does he’ll switch positions or seats at least a few times every few minutes, he’s a fidget bum and always has been.

 

On the Friday he wasn’t, he was lethargic and not himself. I didn’t worry though, as he was off to the doctors on Monday, only a few days away, and maybe he still had the bug hanging around in his system. He was diagnosed as having asthma the year before, but very rarely needed his inhalers.

 

That evening when I was putting him to bed on Friday 24th July 2009 he needed a lot of his inhaler, he sounded a bit chesty and was so worn out he was asleep before I finished the last puff. I was relieved, as with his ‘bad’ behaviour recently I was also worn out.

 

I was sat downstairs with my eldest sister Tracey chatting away, when we realised we could hear something about 2 hours after I’d gotten both boys to bed. On investigation we realised that it was Fin’s breathing that we could hear. We could hear him struggling to breathe through closed doors and from the opposite end of the house.

 

I tried his inhaler, but he looked a bit off colour and was so lethargic that I phoned the out of hours doctor. PLEASE if this ever happens to you ring an ambulance not the out of hours Dr, I didn’t know any better and didn’t realise how serious it was.

 

We went to the out of hours doctor who was about to prescribe Fin some steroids (steroids can raise blood glucose levels massively) and send us home after he’d had some oxygen, when I mentioned casually – I had no idea how important this was, that he had been really thirsty lately and had started having accidents despite being toilet trained for a long time.

 

One urine test later and I was told my son had Type 1 Diabetes. In his hospital records he was diagnosed on 25th July 2009 after a blood test, but we knew from this doctor on the 24th it was just very late at night. I nodded and accepted what the doctor was saying, without realising the implications and then she told us to drive to Treliske the bigger hospital, and that we could stop off at home to collect pyjamas first as they’d want to keep him in over night.

 

I will add here that this Doctor got in to trouble for this, as we should not have been told we had time for anything and we shouldn’t have been driving him ourselves, he should have been in an ambulance with oxygen and expert care. When we got to the main hospital, for the first time of many my little man had to have a cannula put into his hand. It shows how out of it he was, as he didn’t complain or hardly move.

 

When they tested his blood glucose, the meter said ‘HI’ which meant that it was too high to be recorded. The normal blood glucose range is between 4 and 8, and most meters will read up to at least 33. Basically his blood glucose levels were at a very dangerous level.

 

At this point they told me that due to untreated Type 1 Diabetes he had a thing called Ketoacidosis, and that if I had waited for his hospital appointment on the Monday it’s very unlikely that he would have survived.

 

They also said there was no guarantee that if I hadn’t come in that night that he would have made it to the next night even. This is when it hit me just how ill my son was.

 

The NHS website describes diabetic ketoacidosis like this..

This is a serious condition, where the body breaks down fat and muscle as an alternative source of energy. This leads to a build up of acids in your blood, which can cause vomiting, dehydration, unconsciousness, and even death.

 

I have never felt like such a bad parent as I did that night lying in a tiny hospital bed with my son on a drip, knowing that because I missed the signs he almost died. I have also never felt so alone, scared and upset.

 

It took over 24 hours for his blood glucose levels to regulate more, and once he had some insulin in his system he was full of beans. We were in hospital for 5 days, where he was doing somersaults off of beds into walls because we were still trying to get his insulin levels right and he’s still loopy when high these days.

 

Luckily he was mostly accepting of injections, and only had to be held down by myself and a nurse twice before he gave in to it, despite only having just turned 5. In all the years he’s been a Type 1 his acceptance and maturity over it has been amazing and made things a lot easier for me. I’m so proud of him for this.

 

Going home the reality hit me that this was for life, and it seemed strange that everything looked the same when life wasn’t going to be the same again, but my little man was back, he was smiling again and despite knowing he had a life threatening condition to cope with for life, I was so relieved that he was alive, so I knew we could cope with anything.

 

I am so emotional now after writing all of this down, but I felt I had to, and if even one person reads this and spots the signs early in their own child so that they don’t have to almost or actually lose that child, then that would mean the world to me.

 

A slightly teary Stevie x

 

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104 Comments

  1. Mud cakes and wine
    7 July 2015 / 2:41 pm

    As you know I know every emotion you felt when OB was diagnosed a year ago. The blame we put on ourselves for not noticing what was going on, but I too missed so many of the key points. Your doing a wonderful job of bringing type 1 out there and will support everything you do xxxx

    • 7 July 2015 / 2:44 pm

      Thanks lovely, I love that we found each other through our blogs and twitter as I always know when we’re having a bad day you’ll understand!! You’ve made me well up again though and I’m off to pick him up form the second secondary taster day lol

      Stevie xx

      • Nigel
        20 April 2016 / 10:56 pm

        Thank you, what a wonderful story.

        Our 11 year old son Max joined the type 1 club last November, we’re still in shock 5 months

        Many many thanks.

        • 21 April 2016 / 11:13 am

          It takes a lot of getting used to, but it becomes second nature and mostly easier. Sorry your son has had to join the club, it’s not one ayone wants to belong to but he will amaze you with his strength as time goes on – type 1 children are tough and pretty amazing in my opinion. Take care and I hope he’s adjusting well.

          Stevie

  2. 7 July 2015 / 2:44 pm

    Such a powerful post Stevie, must have been like a mini counselling session! Very informative indeed and I’ve seen firsthand your daily duties with Fin. You do it amazingly! Lots of love. Lisa and Fin’s pal, Jack xxx

    • 7 July 2015 / 2:48 pm

      Thanks lovely it was an emotional one, and hard to believe 6 years have passed. Still so proud of him though….except when he sneaks jelly beans!

      Stevie x

  3. melissa
    7 July 2015 / 2:58 pm

    Beautifully written and making me cry reading it too. Brings back all those emotions and memories of when my DS was DX last year. We were told by the doctor on a monday morning to book a fasting blood test for the following week!! DS went back to school and even to Beavers that night but the next day he went to hospital after deteriorating quickly – the nurses told me if we’d waited even one more night things could’ve been much, much worse   You’re right though – our Type 1 children are made of tough stuff and I’m so proud of how they (and their parents) deal with all that’s thrown at them and how much we all support each other xxx (ps. I don’t think I’ll ever forgive myself for how cross I was at him for begging for drinks before bedtime and then soaking his new mattress :( felt like worst mum ever when I realised why)

    • 7 July 2015 / 4:22 pm

      You’re nearly setting me off again as well! The Facebook group is amazing for support, and I’ve only found any of the FB groups this year! It’s scary how many Doctors don’t 100% get how serious it can be and I’m so glad you didn’t wait to do what he said! I think we all have the guilt factor, and until you know they have Type 1 what they do does seem like ‘naughty’ behaviour…and yet although I tell everyone else they shouldn’t feel guilty and they couldn’t have known…that little bit of guilt will always be there for me. Type 1 children are made of a special kind of something, and yours is lucky to have a fab Mum to look out for him,

      Stevie xx

  4. 7 July 2015 / 3:00 pm

    Our story is slightly different as it was Mr M who was diagnosed, he kept googling and saying “I think I’ve got diabetes” and I kept telling him he couldn’t as he’s too old. Man did I feel guilty when we found out he had & he’d been so ill. I’m now probably hypervigilant with Mini M as it can be hereditary, the consultant told us he’s got a 20% chance of having it so I watch out for the slightest sign as I wouldn’t want to make the same mistakes I made with Mr M. xx

    • 7 July 2015 / 4:26 pm

      There is an increased chance if you have a close relative who has type 1 I’m afraid lovely, but I know of loads of people who only ever have that one Type one in the family, and I hope that’s how it goes for you. However if it did happen, your hubby couldn’t be any more fully trained and you’d both spot it and cope quickly. I have to admit you saying he was too old made me chuckle a little bit, the poor man! One of the boys’ godmums was diagnosed in her 40’s!

      Stevie xx

  5. 7 July 2015 / 3:24 pm

    Thanks so much for writing this Stevie – nearly brought me to tears reading it actually!
    I don’t have children but my dog is basically my child and I get so upset when she gets ill, so I can’t imagine what it’s like having an ill child. You must have been in total shock :(
    You are very lucky to have such a brave boy, and I hope you feel you have more than redeemed yourself by making others aware of the symptoms and life with illness! (Not that you have to redeem yourself for anything – you couldn’t have known and so many others must overlook those symptoms too!)

    Thanks for sharing your story x

    Anna
    The Cornish Life

    • 7 July 2015 / 4:29 pm

      He is very brave and I’m very proud of him :)

      Stevie x

  6. jenby davies
    7 July 2015 / 4:00 pm

    Your story made me shed a few tears it was just after our eleven year anniversary if diagnosis with my daughter with type 1 when my son started to show similar signs. Tried to ignore them thinking it can’t happen again! Anyway finally got a Drs appt and eventually got them to test him for type 1 (didn’t want to even with family history) . Twenty minutes later we are in a and e in dka!!!!! Scary times and a huge shock but fantastic hospital staff and nurses at home! Don’t feel guilty I knew the signs but couldn’t believe them!

    • 7 July 2015 / 4:34 pm

      Oh Jenny that must have been awful. I have to admit I’m a worrier now if my youngest non diabetic son is ill, and he has had me dip testing his urine over the years if he’s been going to the toilet even slightly more than usual! At least your son had a fully prepared family who knew what they were doing after diagnosis, I know that doesn’t make it any less upsetting or hard though. I mostly try and stay strong but I do have the occasional angry it’s unfair day that I think most of us type 1 parents have, and having one type 1 child is unfair two is just cruel.

      Stevie xx

  7. 7 July 2015 / 4:06 pm

    A very thorough and detailed post – my husband has been Type 1 diabetic since he was 12 and I watch the children like a hawk, always monitoring how much they’re drinking and going to the loo…although you will all have to cope with this condition for life it doesn’t have to be life-limiting: my husband is currently training to run a 150-mile ultra marathon in the Sahara desert!

    • 7 July 2015 / 4:35 pm

      I love hearing about Type 1’s who don’t let it hold them back Natalie! Eek I can imagine that takes some management and discipline to do, but wow! I swear people with Type 1 diabetes are made of tough stuff.

      Stevie x

  8. Samantha
    7 July 2015 / 4:18 pm

    I just want to say how well you have written this. My Daughter was diagnosed in Jan of this year after being misdiagnosed by her GP. I finally stood and demanded something be done as I wasn’t leaving the room till I had answers. My little girl was extremely ill and had lost 2 stone in weight within weeks I was told I was being over protective and even told it was in my head! When we got to hospital I was told she had type 1 and probably had less then 24hrs to live.
    My daughters twin has tested positive to 3 autoantibodies and has had random BGs readings that have been slightly too high for a non T1 child so feel we are now playing a waiting game but I do know I won’t miss the signs again or put them down to something else until T1 has been ruled out.

    Sam x

    • 7 July 2015 / 4:55 pm

      Thank you Sam that means a lot coming from a fellow Type 1 parent, with posts like these I always worry so much about doing them justice as it’s so important to me. I really do hate that there are so many GPs who either can’t spot Type 1 easily, or who don’t seem to realise the seriousness of it. I can understand it might not be something that they deal with every day, but do feel there is some sort of extra training that they should be provided with or more emphasis on how serious it is when they do their training. I’m so pleased you went with your gut instinct as a mother and your daughter got the help that she needed, and I’m so hoping for you that the BGs are just a blip for your other daughter.

      Stevie x

  9. 8 July 2015 / 8:46 am

    What an ordeal, but I’m so glad you got an early diagnosis and can now manage Fin’s condition. Thanks for staring your story Stevie, so many people will benefit from reading this xx

    • 8 July 2015 / 11:44 pm

      Thanks lovely, after he almost died I knew we could cope with anything else!

      Stevie xx

  10. 8 July 2015 / 7:34 pm

    Well done for getting this out – and if it raises awareness so that just one family is saved the horror of what you went through, it’s well worth it.

    • 9 July 2015 / 12:09 am

      Thanks Helen, I’d started drafting this one a few times and then ended up binning it as I got so emotional writing it, and felt I wasn’t doing it justice. I watched Fin at his last play in primary school tonight and ended up crying as I was so proud of him (and his brother up there), because despite everything he puts up with and the fact his injections have started to feel painful again, he was up there with his friends dancing laughing and smiling and not letting it hold him back.

      Stevie x

  11. 8 July 2015 / 11:20 pm

    Thank you so much for bravely sharing your story. After a couple fo friends havign their children diagnosed recenty i am starting to realise just how earth shattering this is and how important that we all know the signs. Mich x

    • 9 July 2015 / 12:13 am

      Writing this did bring it all back for me and I can just imagine what your friends are going through right now. Can you please tell them from me that it’s ok to feel angry, upset and a whole lot more, but it does get easier with time and it does become the norm even if it never will feel ‘fair’.

      Stevie x

  12. 9 July 2015 / 10:20 am

    Oh Stevie this made me well up. It’s incredible that you’re using your blog as a vessel to let parents know about this. I didn’t even know what diabetes was until I read your blog.

    I really feel for you, it must have been a really scary time and must have taken so much adjustment after. Your posts on diabetes could literally save lives, so although you’ve been through such an ordeal, it’s so inspiring that you’re now trying to help others. You should be just as proud of yourself as you are of your brave son!

    xxx

    • 9 July 2015 / 2:37 pm

      Thanks Chloe, that means a lot and you’re almost setting me off again!

      Stevie xx

  13. 9 July 2015 / 12:12 pm

    I cannot even begin to imagine how terrifying this was for you and you can tell from your beautifully written post how affecting it was. Thank you for sharing such valuable information from your first hand experience, I’m glad he got the diagnosis X #brilliantblogposts

    • 9 July 2015 / 2:46 pm

      Thank you lovely, it was most definitely terrifying!

      Stevie x

  14. 9 July 2015 / 9:11 pm

    Oh poor you and Fin too obviously. What a tough time and thank goodness it was caught on time. Don’t blame yourself though. It’s not your fault. Just goes to show why raising awareness is so important. Thanks for sharing this post.y daughter is always thirsty and pees lots it she doesn’t ever seem particularly lethargic. I will mention it at her pediatric appointment next week though just to be on the safe side.

    • 9 July 2015 / 10:42 pm

      The lethargy usually comes in the later stages, and it’s always best to check things out lovely, but the symptoms can also be a lot of other things and hopefully that’s the case.

      Stevie x

  15. 10 July 2015 / 7:14 am

    Wow, what a beautifully written post. Well done for raising awareness. It is such a heartbreaking ordeal, especially at such a young age. Our doctors didn’t spot it straight away either it really needed “mum intuition”. It’s scary to think how high they can get undiagnosed. I’m thankfully that we go to them in time. Thank you for your posts it’s nice to know we are not alone.

    • 10 July 2015 / 7:34 am

      Thanks Berg, I know you understand exactly how it must have all felt,

      Stevie :)

  16. 10 July 2015 / 9:22 am

    Wow. This is fascinating! I didn’t even really know the symptoms as an adult never mind a child. My mum has just been diagnosed as borderline so I’m keeping a good eye on myself! …This post could be the read that saves someones life so thank you xoxo #PicknMix

    • 16 July 2015 / 1:37 pm

      Thank you lovely, I really hope this post can help raise awareness. The symptoms as an adult are pretty similar, it’s just that being older an adult is more likely to realise something is wrong and can voice it. Scarily some babies get diagnosed!
      Stevie x

  17. 10 July 2015 / 11:21 am

    Oh my god Stevie it sounds like such a horrible and scary experience! But thank you for sharing your experience as it’ll stay in my mind if ever Little Miss shows any of these symptoms.

    Thank god you did manage to get him to that hospital that evening! Don’t blame yourself for it – how were you to know what the signs of diabetes were? I would’ve done the same – put it down to the sickness bug. xx

    • 16 July 2015 / 1:36 pm

      I really wish I had known the symptoms, but it ended well (other than the constant injections etc!) for us luckily, and hopefully the more people know the symptoms the less likely the outcome is to be different for others.

      Stevie xx

  18. 10 July 2015 / 1:12 pm

    I imagine this was very difficult to write. I am thankful you have shared this, I certainly feel more educated about Type 1 Diabetes having read this and would hopefully be able to pick up symptoms I wouldn’t necessarily have known about otherwise. I’m glad your little one is ok.

    • 16 July 2015 / 1:34 pm

      Thank you! It was definitely hard, but the more people know the symptoms the better as it could have all endd very differently.

      Stevie x

  19. Rosana
    10 July 2015 / 1:17 pm

    Stevie,
    Wow!! Reading this lovely blog, I can’t help but to get teary-eyed. It brings back my own memories of when my 6 year old son went thru nearly the same thing just 3 months ago. I did the same as you, where I started to blame myself. “Why didn’t I realize this sooner and bring him to the doctor sooner?” The good thing is that we brought our children and they are doing well now.
    You did such a really beautiful job writing this up and bringing awareness to others about T1D.
    I just pray that one day, there will be a cure and then we can blog about that.

    • 14 July 2015 / 12:11 am

      Now there’s my dream blog post! Thank you for saying I did a good job, it was such a hard one to write for me and it definitely brought it all back for me as well!
      Being just 3 months in if you ever need advice or a rant, you know where I am!

      Stevie xx

  20. 10 July 2015 / 2:11 pm

    I can see why you got choked up writing this. So did I! Awful and terrifying experience for all you to have to go through. Fabulous to share this experience though Stevie because it does raise the awareness for others. Let’s face it, at such a young age, Diabetes would never have crossed your mind, it certainly wouldn’t have crossed mine. Thank you for sharing x Nicky #PicknMix

    • 14 July 2015 / 12:08 am

      So many think that diabetes is an old person disease, but type 1 is unfortunately usually diagnosed in childhood. I feel so sad when I read on social media About people having toddlers and babies diagnosed.

      Stevie xx

  21. 10 July 2015 / 2:51 pm

    My daughter wasn’t so lucky. Was diagnosed while we were overseas and passed away within 24 hours. Reading this brought me back to that horrible day, it is so important to spread awareness so this doesn’t happen to anyone else. Thank you

    • 10 July 2015 / 5:00 pm

      Oh Vanessa you’ve just made me cry reading this. I am so very sorry that you lost her, I can only imagine what you must have gone through. So many, including doctors and other health professionals don’t realise the seriousness of the situation.
      My thoughts are with you and ill be hugging my sons extra tight tonight.

      Stevie xx

      • 10 July 2015 / 7:13 pm

        Thank you, it’s been devastating. We didn’t know anything about the disease. We thought she had altitude sickness.

        • 14 July 2015 / 12:07 am

          The problem is so many of the symptoms can be something else, so it’s not always easy to spot. I really am so sorry about your daughter I’ve been thinking of you ever since I read your first message.

          Stevie xx

  22. 10 July 2015 / 7:22 pm

    Such an interesting read, has taught me a lot of things to look out for but what a terrifying experience you went through #PicknMix xx

    • 14 July 2015 / 12:04 am

      It was terrifying but we’re the lucky ones because he’s still here and in fighting spirit. Stevie x

  23. 10 July 2015 / 8:52 pm

    Oh wow, what a great post to raise awareness, I knew only a small part of this, so you have educated me today! Thanks for sharing your story, it must have been really hard to write down but it is so important.

    • 14 July 2015 / 12:03 am

      It was definitely hard but I knew I had to write this post regardless to try and raise awareness.

      Stevie x

  24. 10 July 2015 / 9:57 pm

    Oh my goodness how very very very scary and upsetting for you. Thank GOODNESS you went in when you did and thank you so much for posting this. Will share x

    • 14 July 2015 / 12:02 am

      It was the worst time of my life and I’m just so grateful that he’s still here that we can cope with anything else. Thanks for sharing lovely, and spreading awareness.

      Stevie x

  25. 10 July 2015 / 10:28 pm

    This must’ve been a very tough post write Stevie but I must th k you I’m sure that it will help someone either adult or child. I’m even glad I now know more about type 1 diabetes too often we live in a world where we think these things won’t touch us (not conciously mostly!) me for one. Of course it does so thank you for spreading awareness xx

    • 14 July 2015 / 12:00 am

      Before Fin was diagnosed I didn’t have a clue about Type 1 and had no idea about the signs, I’m hoping raising awareness might help someone.

      Stevie xx

  26. 10 July 2015 / 10:44 pm

    Oh, Stevie, that must have been awful! I’m so glad you did notice the signs, but they are so easy to overlook and think of as separate issues. I’m keeping note of the symptoms, just in case we or any friends mention a similar combination! Thank you for sharing, it must be hard to write and definitely made me feel a little teary too. Well done to Fin for being such a brave little boy. xxx

    • 13 July 2015 / 11:59 pm

      Thanks hon, he is ridiculously brave and makes me very proud :)

      Stevie xxx

  27. 11 July 2015 / 9:50 am

    Oh my god, I can’t believe that happened to you. Thank goodness he’s okay. Thank you for writing this post, I had no idea about this type of Diabetes and how serious it can be. I only knew about the one people get in the 50s. That list you wrote is really useful, at least you have spread awareness in case it happens to anyone else.
    Sabrina xx
    #picknmix

    • 13 July 2015 / 11:58 pm

      Thanks lovely, I am hoping this post might help someone to prevent the worst from happening. Type 1 can be pretty scary even after diagnosis but Fin just gets on with if and is the bravest person I know.

      Stevie xx

  28. 11 July 2015 / 6:02 pm

    A brilliant post to raise awareness. How scared you must have been. You must be so proud of your son and his maturity in dealing with such a serious medical condition. #pickandmix

    • 13 July 2015 / 11:57 pm

      I am extremely proud of him, he’s coped with so much in the last 6 years but doesn’t let it beat him.

      Stevie x

  29. HonestMum
    12 July 2015 / 11:33 pm

    Such a vital post for so many, well done to you and your son for dealing with what I can only imagine was, hugely stressful. Thanks for linking up to #brillianblogposts x

    • 13 July 2015 / 11:56 pm

      Thanks hon, this was a difficult one to write but an important one! And Fin makes me proud every day with how he copes with all that Type 1 throws at him on a daily basis.

      Stevie xx

  30. 14 July 2015 / 1:30 am

    Really important post! Great of you to raise so much awareness about a topic most people don’t really know about or understand, and I’m sure this will be a lot of help to other parents out there and even if the symptoms don’t turn out to be related, it’s so much better to be safe than sorry and I don’t think anyone should ever worry about feeling they are pestering by going to check at the hospital/doctors. So glad your son was okay and you have been able to tell this story to help others x

    • 16 July 2015 / 1:31 pm

      Thanks Mands lovely, it was a hard one to write as I end up in tears thinking back to then anyway but was determined to do it. Spurred on by how much strength you’ve shown through everything. You amaze me hon,

      Stevie xx

  31. 14 July 2015 / 11:30 am

    Oh Stevie – this is such a great informative post. Thank you for raising awareness. It must have been such a terrible thing to have to go through. xxx #PicknMix

    • 14 July 2015 / 1:50 pm

      It really was but thanks lovely x

      Stevie xx

  32. 16 July 2015 / 10:13 pm

    Gosh that must have been so scary for you! This is such a great post, hopefully it will help others xx

    • 17 July 2015 / 9:30 am

      Thanks Eilidh it was a pretty horrendous time

      Stevie xx

  33. 24 July 2015 / 8:57 am

    It is so important to share, as you know Jack too got to this stage and was very lucky, he wasn’t quite a poorly but his sugar was 34 so scary and now we live with it well as you really have no choice do you x

    • 24 July 2015 / 11:09 am

      Most definitely Sarah, it’s not easy at all and some days can feel like hell like when they have a tummy bug! After him almost dying I can cope with anything else it throws at us though ;)

      Stevie xx

  34. Emma
    24 July 2015 / 10:49 am

    3 weeks ago my son followed almost the same story as yours even downto the poor advice from the doctor about going to hospital I too had no idea what was going on and how serious it was until he was rushed in to resus
    Thank you for sharing I hope parents read this and keep a note of symptoms

    • 24 July 2015 / 11:47 am

      Thank you Emma, and I’m so sorry you’ve joined the type 1 parent club. However I’m so pleased it was diagnosed in time (sadly just!), and I really hope he and you are coping okay. If you need any advice or support feel free to contact me on any of my social media or through my contact form on here. It’s very hard at first and feels impossible but it does get easier.

      Stevie x

  35. 24 July 2015 / 12:49 pm

    What a terrifying experience. You weren’t to know how poorly he was though. Thank you for sharing your story so hopefully someone else can spot the signs before their child gets as sick as your little boy was that night.

    • 24 July 2015 / 1:24 pm

      Thanks Helen, it was definitely terrifying and I do so hope this post might make things a little less scary for another family with an earlier diagnosis!

      Stevie x

  36. carrie jackson
    27 July 2015 / 7:46 pm

    It’s been 3 years this month since my daughter was diagnosed with T1 at the age of 14. Although I did recognise the symptoms, I had no idea how serious Type 1 diabetes was. Awareness is key. I even sent her to complete her Duke of Edinburgh expedition! Being a T1 mum is so tough – I’ve learnt to take one day at a time…

    • 27 July 2015 / 9:48 pm

      One day at a time is definitely the way to go! Fin had his annual bloods today so a lot of upset, he can cope easily with 5 injections a day but he detests blood tests, but at least it’s a year til the next one!

      Stevie x

  37. 28 July 2015 / 8:09 am

    What an utterly terrifying experience that must have been for you and I am so glad that you got that diagnosis just in time. Thank you for sharing your story to help raise awareness of the signs and symptoms – I was aware of thirst and frequent urination but not the others and will be sharing to help raise awareness x

    • 28 July 2015 / 12:58 pm

      Thanks Louise, it was definitely scary, and so glad I took him in that night! The alternative still gives me the occasional nightmare!

      Stevie x

  38. 14 August 2015 / 1:14 pm

    I can draw so many similarities to my diagnosis. I spent 3 days in bed, which is something I never do. My Mum got angry at me when I woke her up at 2am making an orange juice granita with the ice shaver. The doctor (who had failed to diagnose me) ordered bed rest and hot drinks, but all I wanted was orange juice! I later ended up in hospital with ketoacidosis just like your son, struggling to breathe. Dont feel guilty about what you did or didn’t do, I wouldn’t have guessed that I had diabetes either. You would think that’s the doctor’s job, right? The important thing is that you were alert to his symptoms which ultimately saved his life. Thanks for sharing, it’s never easy reliving your diagnosis.

    • 14 August 2015 / 3:16 pm

      Thanks Frank, it doesn’t worry me how many doctors seem to have no idea how to spot or understand Type 1 Diabetes! I was accused by Doctor once of selling Finley’s testing strips as I was getting so many on his free prescription! I put in a complaint to the surgery and showed them his blood glucose meter to show them just how many times a day he was actually pricking his finger. Luckily there are good Doctors out there, but I do feel they should have a Type 1 refresher course every so often!

      Stevie :)

  39. Laura
    15 August 2015 / 6:57 am

    Thanks for sharing this. I hope this is some comfort to you: I’ve had type 1 since I was 13. It’s not always easy, but I’m happy, healthy, and don’t feel I’ve missed out on anything life has to offer. You are a great mom and your boy will your need your positive example. I was “lucky” and my parents knew the symptoms as my dad had been diagnosed with type 2 7 months prior. You’re right, awareness is key.

    • 15 August 2015 / 8:53 pm

      Thanks Laura, we make sure Fin has as ‘normal’ a life as possible, and I refuse to let him miss out on things because of Type 1 :)

      Stevie x

  40. Sarah
    28 August 2015 / 2:46 pm

    Its made me teary reading it! Well done for writing it up, I now know a hell of a lot I didn’t before reading this, thank you.

    • 28 August 2015 / 7:53 pm

      It was a difficult on to write, thank you

      Stevie x

  41. Desiree
    29 August 2015 / 3:59 am

    Thank you for sharing your story. Our Son was diagnosed 6 months ago. Still looking back on signs we missed and having our 9 yr old in ICU because we didnt know anything about type 1 fills me with guilt. His symptoms went right along w a boy who was growing and he was up until it seemed he got the the flu. Then came the breathing. We now are in process kf getting a pump and have his A1C levels at 7.3 which endo is pleased with but obviously need to get better. I feel like it is now my mission to bring awareness. I too feel your pain. GOD Bless you and your family. Thank you for letting me know I am not alone.

    • 29 August 2015 / 1:58 pm

      Good luck with the pump, my son refuses to have one so we’re on mdi still, but it suits him for now. It all gets a lot easier as time goes on, but I’m sorry your son has to cope with it like mine does,

      Stevie x

  42. 29 August 2015 / 1:21 pm

    It made me teary as well :( what a horrible experience it was for you all, and you shouldn’t feel like a bad parent, you just didn’t know. Such an important story to tell to other parent, I will rt this.

  43. 9 September 2015 / 8:04 pm

    It’s actually brought tears to my eyes reading this Stevie thank you for sharing and I hope that it will help others if they are in the same situation what you both must have gone through. xx

    • 9 September 2015 / 11:13 pm

      Thank you hon, it was a hard one to write and there were definitely tears as I did!

      Stevie xx

  44. Michelle
    17 September 2015 / 9:38 pm

    Thank you for sharing your story. Sadly very similar to my own experience of my then 18 month old, now 4 years old and just started reception class.

    • 17 September 2015 / 10:15 pm

      18 months! It makes me incredibly sad to hear about any child having to cope with Type 1, but the unfairness of it in such young children definitely hits me. It definitely makes you so proud of them for how they cope though. I really hope one day I get to write a blog post about them finding a cure.

      Stevie x

  45. 25 September 2015 / 6:40 pm

    You are not a bad mother at all, very very few of us know the signs of type 1 diabetes – I only vaguely know as unfortunately a friend’s son suffers with it. I’m so glad he was ok, thanks for sharing your experience xxx

    • 25 September 2015 / 7:52 pm

      Thanks Nicola, it was an awful time, but he makes me so proud with how he copes!

      Stevie xx

  46. 18 October 2015 / 2:00 pm

    Cannot imagine how terrifying that was for you. I’m so glad you got the diagnosis in time though.
    Such an important post, well done for sharing it

    • 18 October 2015 / 2:26 pm

      Thank you, it was the worst time in our lives, luckily we found out in time. It’s a big thing, but it’s a part of our lives now, and I don;t let it stop him from doing anything

      Stevie x

  47. Kate Holmes
    18 October 2015 / 7:49 pm

    You were not a failing mum – you were an uninformed one and until tonight so was I having never heard of the four Ts in that way. This post needs sharing and widely. – well done you for writing it and I am so sorry that you went through such a stressful time

    • 19 October 2015 / 1:00 pm

      Thanks Kate, I am really rather proud that this is the post with the largest amount of views on my blog so far!

      Stevie x

  48. 23 October 2015 / 5:59 am

    Stevie,

    Thank you for educating others about the dangers of undiagnosed and misdiagnosed Type 1. Having two T1Ds for a combined thirty years now and after hearing of so many DKA tragedies, our family began Test One Drop in early 2015 to spread awareness and battle this issue.

    I shared this blog entry on out Facebook page tonight. fb.me/testOneDrop A few people have left you comments there. Please invite look over our URL and tell your friends about us.

    Thank you again!
    Cindy T.

    • 23 October 2015 / 6:58 am

      Hi Cindy,

      Thank you so much for sharing, this is the post out of all that I’ve written, that I’m the most proud of…and the hardest to write. I will investigate your page etc the weekend, but well done for working so hard to make a difference! I’m so proud of how my son copes with it all 6 years on, but it could have been a very different outcome.

      Stevie x

  49. 11 December 2015 / 4:44 pm

    Thank you for sharing. A couple of my friends have children with type 1 diabetes, as do several adults I know. It must have been a very scary situation, glad your son is coping well nowadays. Just need to make sure he’s sensible in his teen years! #picnmix

    • 11 December 2015 / 9:51 pm

      He’s 11 now so we’ve edging ever closer to those teen years scarily enough! He mostly does well, although we’ve had an awful week with him being ill

      Stevie x

  50. 12 March 2016 / 11:13 am

    Such a fantastic post, and I don’t think many people realise how serious Type 1 is.

    • 12 March 2016 / 6:30 pm

      Thanks Danny, I really don;t think they do – I never did until we had to deal with it ourselves

      Stevie

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